Mid to Late Nov Update 2007

[Tamet Gould]

Well we seem to be leveling Ben back out.   He behaviors are leveling back out and the bad ones are deminishing somewhat.   He still isnt as communicative as he was in early Sept.   Not sure whats up with that either.    <DUMMY ME>

We added back in one more supplement this week, its called memory sustain.   Next week I will added the SAMe back in and hopefully he will continue to improve.   I am watching what he eats like a hawk.

Cant remember if I told yall or not but they didnt find squat with the upper colonoscopy and gave me no support on the chronic issue of constipation with him.   Dr Pohl was concerned that he had so much snot in his belly and wanted me to take him to an allergist.   I told him it was a waste of time, the last one we saw there tested him and chewed on us because we werent feeding him certain foods even though he didnt test positive for allergies to them.  I should have let him carry him home that day and feed him whatever he wanted to feed him.   Bet I would have got a phone call within an hr that said "COME GET THIS MONSTER!"  Anyway, I stuck to my guns and his diet has helped him so we will see what the new guy thinks next month. 

[Tamet Gould]

Interesting day yesterday.   At about 400pm Ben went to his room and pulled out ALLLLLLLLLLLLLLLLLLLLL his books and began to go thru them all.   He brought 3 into the living room and asked me to read them to him.    Then he leaned over me and picked up his big "bubble bottle" (I had hidden it beside the couch) and puts it in my lap and I asked him, "What is that"?   He just spouted off, "Bubble"  I said, COOOLLLLLLLLL!!!!!!  and we blew bubbles for a while.   

Then he jumped on his ball for a while then wanted me to play his "wee game" and several others.   Wonder is we are taking that up hill pathway again.   Im ready for the giant leap forward.   :TIGGER: :TIGGER: :TIGGER:

I will keep you posted.   Yall have a wonderful Thanksgiving.

[turnincircles]

So glad he is doing better.  One more thing to be thankful for this year.

[Tamet Gould]

AMEN!!!!

Things are still looking good.   He is riding his mower, wanting us to read and I have started him on his abc's and counting again.   I had him help me make some homemade ice cream yesterday.   He was pouring and running the blender and taste testing.   It was funny  :ROFL2:   His ice cream recipe is kefier, 1/2 & 1/2 and strawberries, with honey and just a bit of vanilla extract.   It was good and he had a great time making it and eating it.   In fact last night about 8 he came walking out of the kitchen with a spoon and a little bowl of what he thought was ice cream, it was hillarous (it was really some meat grease and fat that I had put in the freezer), so we went back and got the ice cream and munched on that for a while.   

He was repeating everything I ask him to yesterday and even things I didnt ask him to, which was interesting.   

So here is the regime so far this week:
B12 Shot every Tues, Thur and Sat (2 mg meythlcobalmin) not sure on the spelling of that
1 cup kefir with 3 tsp of cod liver oil in AM and PM
2 Valtrex per day
1 Amantadine
2 tabs Metanx
1 Memory Sustain
1 capsule of Milk Thistle 2x's a day
1 tab Cortef
1 tab Diflucan every other day
1 tab Lithium
Plus he gets digestive enzymes with every meal and a probiotic daily along with his 3 Formula #1 capsule a day

And I added 1 capsule of SAMe a day this week.   I will keep yall posted.   We are on a steady climb back up that mountain.   Thank God   :TIGGER:  But, I will see what the SAMe does to the climb. 

This moving slowly stuff drives me CRAZY (at least I dont have far to go  <DUMMY ME> )

[Bob Gould]

Yesterday Ben didn't want anything to do with me at all he was pinching and got up screaming at the top of his lungs. Tamet didn't give him any SAMe to day and he is lots happier so we are thinking he has some sort of trouble with the SAMe.

[Tamet Gould]

actually I took him off of it yesterday so it probably cleared his system last night.   But yes, much much better.  He is full of all sorts of Bull today!!!  >:D